Playing Dress Up

Playing Dress Up
Brenna wearing Mama's hat.

Sunday, July 15, 2012

America's Shame

Shame on rehab hospitals who refused to give Brenna a chance to recover and benefit from their services. Seventeen hospitals receive federal funds for the rehabilitation of patients with a brain injury. They want only traumatic brain injuries. They have a 35% quota for hypoxic or anoxic brain injuries and want to reduce that number. A reduction in numbers accepted equals fewer beds available for hypoxic/anoxic brain injury patient and a reduction in services to the most vulnerable.

To read Brenna's story, please check out her book: Condemned to Die: Ask me how. Tell me why. You can purchase the book online through Amazon, Barnes & Noble, or WestBow Press. You can purchase a Kindle or Nook version.

Cognition History of Brenna Deshawn Dowd

These were sent to rehabilitation hospitals along with videos and PowerPoints to show Brenna’s progress. One rehab hospital called to tell me they don’t DO evaluations this way. Many of the rehab hospitals are funded by tax dollars yet do not want to accept a patient with an anoxic or hypoxic brain injury.

         Day 1 - Has always known her Mom/always tracked Mom

         Day 1 - Face showed abject fear at negative comments around her

         Day 1 – Calmed by Mom singing inspirational songs

         Day 2 – Opened eyes to watch Mom/ Squeezed friend’s hand

         Day 3 – Startles to loud sound

         Day 4 – Tracked staff at hospital

         Day 5 – Nods yes to questions

         Day 6 – Raised right hand at mom  – 2X – Staff observed

         Week 2 – Showed fear at new environment

         Week 2 – Depression at new environment/spiraling backwards

         Week 2 – Grinding teeth

         Week 2 – Cried when Mom left for night

         Week 2 – Banging head to express pain

         Week 2 – Kicking with right foot

         Week 3 – Vocalized frustration at environment

         Week 3 – Expressed pain in abdomen by pressing with right
                 hand

         Week 3 – Expressed need to potty by pumping right arm/hand

         Week 4 – Cried when physician said she “wasn’t going
                anywhere”

         Week 4 – Extreme agitation – neuro storming

         Week 4 – Raised mom’s hand when told she was “busting out” of

                     the first nursing home

         Week 5 – Sitting on side of bed/holding balance

         Week 5 – Attempts to clean self after bowel movement – pushing 

                     gown and sheets between leg

         Week 5 – Tracking staff

         Week 6 – Potty feeling activated upon sitting up

         Week 6 – Fighting too small wheel chair

         Week 6 – Putting legs out of bed

         Week 7 – Expressed extreme anger  with eyes at being suctioned
                 by  nurse

         Week 8 – Sucking on foam tooth brush

         Week 9 – Scissoring in bed to escape messy bed

         Week 9 – Fighting too small  cardiac chair

         Week 11 – Expressed anger at presence of someone she knew 
                  did not belong in her life

         Week 12 – Responded to Dr. Capricchione/Tracking/Watched
                  intently

         Week 13 – Watched BSU Bronco game (and all subsequent games)

         Week 13 – Song “Climb up Sunshine Mountain” brought her out 
                  of situation caused by excessive potassium

         Week 13 – Responded to Dr. Ziola/Tracking/Watched intently

         Week 13 – Understood transferring to new facility

Therapy Responses (After transfer to LCTV)

         Transfer to Life Care Treasure Valley Sept 9, 2010

        Receiving intensive therapies

        Watching favorite kids’ movies

        Tracking sounds

        Smiling at staff

        Rolls shoulders forward to sit up

        Crosses legs at ankles

        Responding to anyone blocking TV – glares until person moves

        Moves head back and forth to “wash” face

        Sticking out tongue on command

        Turning head on command

        Opens mouth on command

        Stands with assistance (needs encouragement at times)

        Straightens spine on command

        Standing in LiteGait

        Initiated foot movements on treadmill in LiteGait

        Moving feet in LiteGait — up to 1000 feet

        Lifts head to assist aides with dressing/trachea mist

        Pushing leg straight against Mom’s leg

        Shakes head for “no”/Blinks eyes rapidly for “yes”

        Answered appropriately: Are bears blue? Are penguins purple?

        Ate snow

        Pointing tongue

        Remembers homework to stick out tongue at everyone

        Strumming of right hand indicates need to potty

        Pushing right hand toward crotch indicates she has pottied

        Indicates boredom at isolation in room

        Lost spacey look in good eye

        Interested in sink-purposeful movement toward sink

        Looked around with interest during transfer to hospital for PEG replacement

        Attempts to stand before given OK by therapist

        Rolls forward to count of 3

        Assists in turning herself

        Holds herself in position to count of 10 most of the time

        Blinked yes to “Do you want to go to brain injury hospital?”


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