Playing Dress Up

Playing Dress Up
Brenna wearing Mama's hat.

Tuesday, March 20, 2012

Un-Care by Nursing Staff and Aides

My opinions are based on conclusions of over 6000 hours and 16 months of observation of care in three nursing homes and four hospitals with the care of my daughter who suffered a medically unexplained anoxic brain injury on May 26, 2010, following a retina repair surgery. These comments are only the tip of the ice berg.

Have you ever been a patient in a hospital or nursing home, totally dependent upon staff members to turn your body on schedule? If you haven’t, you are in for a non-treat.

Here is the way patient care goes in many hospitals and nursing homes.

Repositioning is SUPPOSED to be every two hours at least.

Reality: Whenever staff chooses to make the turn. That may be 4-6 hours, no matter how it is documented.

Patients are SUPPOSED to be placed in a comfortable position.

Reality: Patients are frequently left for long periods in positions with their heads and knees against the railings.

Patients who cannot use the call button are SUPPOSED to have a soft-touch call button, placed under their arm so that any unusual movement will call for help.

Reality: Patients do not get a soft-touch call button. And if there IS a soft-touch, the call button may be placed out of reach, not under the arm.

Patients, according to the CDC are not SUPPOSED to be on a catheter long-term. Catheters are the greatest cause of hospital acquired infections.

Reality:  Facilities use catheters long-term because it is easier on the staff. I call this the lazy staff syndrome, acceptable in most facilities.

Patients who are no longer on a catheter are SUPPOSED to be under CHECK AND CHANGE guidelines, and checked for changing at least every two hours.

Reality: Not so. Staff likes to huddle around the unit desk and chat about last night’s junk-watching reality show better than take care of the reality of patient care down the hall. If a patient is so unfortunate enough to soil their clothes immediately after being changed, hear the staff complain.

Patients who cannot take care of themselves need an extra-wide hospital bed for extra room when being repositioned.

 Reality: Few facilities care about this special need.

Patients receive two showers per week.

Reality: Not if you are not mobile. If you cannot take care of yourself, showers are few and far between, no matter WHAT gets documented. Brenna went 10 weeks in an LTAC without a shower, in spite of the extra large bathroom attached to her room. In the last nursing home, she went 14-18 days between showers. Sorry, being wiped down with baby wipes is NOT a shower.

Patients are well-loved by all staff members.

 Reality: Patients are a return on investment and investors have little concern about the care patients receive. As long as facility managers receive a bonus for cutting corners, patient care will continue to decrease.

All staff is educated on how to recognize when a patient is in trouble and call for help. According to admittance staff, even the janitors know what to do.

Reality: Many aides are not trained to recognize when the patient bed is at the wrong angle for a feeding tube or how to handle a patient with a catheter. Most staff doesn’t have a clue how to take care of a trach, and that includes facilities that provide an RT. Brenna was left many times at an angle low enough to cause her to aspirate formula into her lungs. I had to frequently tighten her trach collar so the cannula would not rub her throat. I watched two charge nurses jerk Brenna up in bed once, pulling on the catheter.  And janitors certainly do not know what to do.

Medical records are kept up-to-date and are accurate.

Reality: From my observation, medical records indicate what should have happened, not what actually did happen. Apparently state inspectors are not equipped enough to see that the handwriting is the same for multiple nurses on different shifts.

Staffing is supposed to be adequate to take care of all patients.

Reality: Staffing is not based on acuity of care. No matter how many critical cases a unit may have, investor owned facilities cut back on care; leaving patients cared for by over-burdened staff with too many patients

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