For those families facing therapy obstacles for a brain injury, please read this page for the Medicare guidelines for caps on therapies. In my opinion, a brain injury should not be limited to the same caps as other less challenging medical health issues.
Follow me on my daughter's journey to recovery after a sudden medically unexplained hypoxic brain injury, her 16 months of recovery, and her sudden cardiac arrest that eventually took her life. This is about my beloved Brenna and a mother's reflections while she was ill and after her loss. God has sent me on a journey to use her story to help and educate others. The opinions on this blog are based on 6000 hours spent with My Brenna over a 16 month period.
Playing Dress Up
Brenna wearing Mama's hat.
Wednesday, March 13, 2013
Monday, March 11, 2013
Day 12, Brain Injury Awareness Month
March 12, 2013
Please share this information.
Day 12 of Brain Injury Awareness Month. USA families and patients...If you live in the Congressional district of anyone on the Congressional Brain Injury Task Force, give them a call today. FAX them if you can. Emails aren't as successful. Too easy to delete and ignore. If you send a snail mail letter, use non-white paper/envelope so it stands out in the pile of other mail they get.
http://www.pascrell.house.gov/
Please share this information.
Day 12 of Brain Injury Awareness Month. USA families and patients...If you live in the Congressional district of anyone on the Congressional Brain Injury Task Force, give them a call today. FAX them if you can. Emails aren't as successful. Too easy to delete and ignore. If you send a snail mail letter, use non-white paper/envelope so it stands out in the pile of other mail they get.
http://www.pascrell.house.gov/
March-Brain Injury Awareness Month
March 11th...Eleventh day of Brain Injury Awareness month.
Reach out to someone you know who has a brain injury. Cover their aloneness with your love.
Educate someone you know about brain injuries.
Acquired Brain Injuries (ABI) includes traumatic brain injuries (TBI) as well as hypoxic-anoxic brain injuries.
Reach out to someone you know who has a brain injury. Cover their aloneness with your love.
Educate someone you know about brain injuries.
Acquired Brain Injuries (ABI) includes traumatic brain injuries (TBI) as well as hypoxic-anoxic brain injuries.
Sunday, March 10, 2013
My Brenna, My Penguin
March is national Brain Injury Awareness month. Do something to bring awareness to brain injuries by honoring someone you love who has a brain injury.
God gave me a blessing when I was 35 years old. I had begged God for a baby of my own. I promised God that if he hadn’t given me a baby by the time I was 36, I would never ask again. Well, 5 ½ months short of my 36th birthday, my beautiful Brenna came into my life at 3 days old.
Through her, I saw the world through the eyes of a child. All through her life, she shared the wonders of God’s creation with me. She took me on tours through the night to find deer and other wild life that is only out at night. I sure miss those wandering times.
On her last Christmas before her brain injury, we went to the late service at a nearby church. The pastor talked about having the courage of a penguin to launch into the unknown in spite of the dangers. Soon our house gathered penguins. She said, “Mom, I want to be a penguin.”
Brenna girl, I didn’t know it would be this way but you are my little penguin. Your journey to recover in this broken health care system is a shining example to keep on doing the impossible, reaching for what professionals called the improbable, and yet, each day of your life was a miracle. Thanks for sharing your life with me, my little penguin.
In the blink of God’s eye, Mom will be there with you.
God gave me a blessing when I was 35 years old. I had begged God for a baby of my own. I promised God that if he hadn’t given me a baby by the time I was 36, I would never ask again. Well, 5 ½ months short of my 36th birthday, my beautiful Brenna came into my life at 3 days old.
Through her, I saw the world through the eyes of a child. All through her life, she shared the wonders of God’s creation with me. She took me on tours through the night to find deer and other wild life that is only out at night. I sure miss those wandering times.
On her last Christmas before her brain injury, we went to the late service at a nearby church. The pastor talked about having the courage of a penguin to launch into the unknown in spite of the dangers. Soon our house gathered penguins. She said, “Mom, I want to be a penguin.”
Brenna girl, I didn’t know it would be this way but you are my little penguin. Your journey to recover in this broken health care system is a shining example to keep on doing the impossible, reaching for what professionals called the improbable, and yet, each day of your life was a miracle. Thanks for sharing your life with me, my little penguin.
In the blink of God’s eye, Mom will be there with you.
Subscribe to:
Posts (Atom)